Sufferers Of Rare Disease

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Posted on September 21, 2018 at 18:54 PM



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Informing patients with a rare disease about their

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Recent Posts For Sufferers Of Rare Disease

Rare Diseases: Sufferers Turn to Web for Help
Feb. 28, 2011 -- People who have rare diseases -- and their caretakers -- are the savviest seekers of online health information and support, a Pew survey finds. Health information trails only ...
Brexit risks for UK rare disease sufferers must be ...
Rare diseases affect an estimated 3.5m people in the UK, 30m people in the EU and 300m worldwide. It is possible to identify more than 6,000 different rare diseases and the number of diagnosable ...
Profile of Rare Diseases - Rare Diseases and Orphan ...
Particularly when a condition is extremely rare, patients and families frequently have to travel long distances to consult with the few experts who have experience in treating and studying their rare diseases; patients and their families may even relocate to make access easier.

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